Videos

Kyler helping his sister out by removing dust via air compressor after their first ATV ride.

A HUGE Thank you to Ascend Performance Materials for Making Kyler and my entire family feel so very special. #PrayforKyler #AMiracleforKyler #ACureforKyler

In Brain News, researchers have recently performed a successful surgery to repair a Vein of Galen Malformation, in a baby’s brain before birth. This month's interview is with Brianna McCulloch who runs the Kailee Mills Foundation-- a charity on a mission to save lives one seat belt click at a…

Prototype for Sammy's Call for Help Alarm

A Pediatric ischemic stroke is a type of stroke that occurs when a blockage, such as a blood clot, reduces or completely stops blood flow to a part of the brain. This causes brain cells to be damaged or die, which can cause long-term disabilities. Our guest today, Mara Yale…

This podcast starts with a brief explanation of genetic condition, Hereditary Hemorrhagic Telangiectasia (HHT), and follows the medical journey of Stephany Zumerling, a woman who was finally correctly diagnosed with HHT and other medical conditions after many years of being misdiagnosed from doctors who did not take the time to…

This podcast starts with a brief explanation of genetic condition, Hereditary Hemorrhagic Telangiectasia (HHT), and follows the medical journey of Stephany Zumerling, a woman who was finally correctly diagnosed with HHT and other medical conditions after many years of being misdiagnosed from doctors who did not take the time to…

Best Sandy dog actor ever for the Annie Musical production! Annie, the officer and the dog made the perfect team! The dog is a professionally trained service animal for a boy who had a hemorrhagic stroke at age 15 from a brain AVM his family did not know he was…

In Brain News, A study with the University of Cincinnati will examine the effectiveness of a stroke treatment for patients with a pre-stroke disability, one of the first studies to focus on this population. Our guest today is a spokesman from the sweetest non-profit I know, Icing Smiles, an organization…

In Brain News we go over two published studies from Stanford University involving Stem Cell treatment for Stroke survivors. Our guest today is Johnathan Slifka who was born with spina bifida who discusses the importance of working together to make positive changes in what you want to see happen in…

Episode 9: A New AVM personal journey book “A Stroke a Heaven” was released, guest Heather Golladay, whose husband suffered a stroke discusses the importance for looking at the bright side of things, and Chapter 5 of Suffer Strong, is reviewed where redefining loss and opening our hands to the…

Kyler's Dr. visit in April of 2021 -- at the start of the Brain Swelling.

Today's episode includes a discussion on yesterday's MSN published article: “Doctors dismissed these 3 young people's symptoms as migraines or drug-related — but they were really having strokes.” We welcome guest Dina Chon with the Aneurysm and AVM Foundation and end with a short discussion on pain, perspective and PTSD…

Today we are going to get caught up on some Awareness Month information and statistics. Our guest on the show is Amy Danner, who is the mother of an AVM Survivor and Epilepsy warrior. We are going to end with a short discussion on the prologue and chapter 1 of…

Today we are going to be talking about something many parents consider for their child who has a disability: service animals! We are going to go over the general ADA rules as well as the steps to take and things to consider when deciding if a service animal is the…

Today we are going to be talking with guest Sherri Logan who started The AVM Research Foundation with her husband Mark and we will end with a short discussion on the second half of Chapter 1 of our current focus book “Suffer Strong" by Katherine and Jay Wolf. The AVM…

Today we are going to be talking about the UCSF Pediatric Stroke Research Center and three of their current research projects headed by Dr. Heather Fullerton. We will visit with guest Jennifer Dwyer whose beautiful son Brayden gained his wings just days after his AVM rupture and learn what is…

Today we are talking about brain Aneurysms and will be visiting with Natalie Niekro who started the Joe Niekro Foundation after her father’s sudden passing from a ruptured aneurysm. And We will end with a short discussion finishing up Chapter 2 of our current focus book “Suffer Strong” by Katherine…

In today’s news we will talking about a new youth medial clinic that just opened this past November for children suffering from Cerebral Palsy, Traumatic Brain injury and stroke based on published journal findings on Hyperbaric medicine for brain injuries in children. We will be visiting with Tim Siegal who…

This week, the short film Time Bomb was released to showcase the real life challenges of a rare disease diagnosis and was created with the help of The Aneurysm and AVM Foundation. With the holiday’s approaching, decadent treats and delicious food on the horizon it is no wonder heath and…

One of the Children's books I wanted to send out for AVM Kiddos

This is a detailed interview about Kyler's pediatric stroke and what it is like when you receive a diagnosis of an inoperable large grade AVM. This video was made to assist parents of children diagnosed with this condition.