Videos

SE 2: Episode 6: The Therapy Trifecta

Creed was born without a brain but his brainstem is intact and he is now 9 years old. His mom talks about their journey as well as about the grief that comes with having a child who is terminally ill. www.avmalliancepodcast.com

SE 2: Episode 5: Creed is missing the majority of his brain. He essentially only has his brain stem and all of his other brain is missing. Doctors deemed her child deemed incompatible with life, but Creed has defied the odds is now 9 years old. What is anticipatory grief?…

Today, I am excited to introduce our listeners to Ami Waggoner who has graciously come on today to tell us the story of her medically complex child Luke and Kathy Derr, founder and director of family engagement for the absolutely fabulous organization everyone should know about — A Kid Again…

Thanks to the extremely hard work of AVMalliance.org volunteer Rilynn Lewis, Greg Abbott has officially declared October as AVM awareness month for the State of Texas. Thanks to Rilynn’s advocacy efforts, the city of College Station has followed suit with the declaration of October as AVM awareness month.

Happy October to all our listeners. October is Brain AVM Awareness Month. As a reminder, A brain AVM is a tangle of abnormal arteries and veins, that do not have the needed capillaries in between the connections. If you would like more information on Brain AVM’s: AVM Alliance, an official…

Know the Facts about Pediatric Stroke. The Signs of a Stroke are often missed in children and teens because of a lack of awareness that a stroke can happen at any age. Stroke has No Age Limit www.avmawareness.org

Stroke is among the Top 10 Causes of Death in Children Stroke has no age limit www.avmalliance.org

Children may have different symptoms than adults when having a stroke www.avmalliance.org

Know the facts about brain vessel disease -- Brain AVM -- Arteriovenous Malformation. The first symptom of over 1/2 patients with a brain AVM is a brain bleed -- hemorrhagic stroke. www.avmalliance.org

Know the facts about Brain AVM, Arteriovenous Malformation -- Brain vessel disease www.avmalliance.org

Know the Facts: Brain Vessel Disease, Brain AVM, Brain Arteriovenous Malformation www.avmalliance.org

Know the Symptoms of a Brain Aneurysm www.avmalliance.org

Know the Facts: An Aneurysm and a stroke are not the same thing www.avmalliance.org

Know the Facts: Between 6-15 million people in the USA Have a brain Aneurysm but 90% know little to nothing about it www.avmalliance.org

Know the facts: Every 18 minutes a Brain Aneurysm Ruptures

Know the Facts: One in every 50 people has an un-ruptured brain Aneurysm www.avmalliance.org

Approximately 18 people in every 100,000 in the United States have an AVM in their brain. www.avmalliance.org Stroke has no age limit. www.avmalliance.org

This is the soundbite for The Doctor Is In: Pediatric Stroke, Epilepsy & Medical Terms for the AVM Alliance Podcast SE:2 EP:2 www.avmalliance.org www.avmalliancepodcast.com

This is the Soundbite for The Doctor Is In: brain vessels MRI, CT's Explained for the AVM Alliance Podcast SE:2 EP:1 www.avmalliance.org www.avmalliancepodcast.com

This is the Season Finale Soundbite for Season 1 of the AVM Alliance Podcast titled Against the Odds: Survivor Stories SE:1 EP:15 www.avmalliance.org www.avmalliancepodcast.com

This is The Soundbite for the interview with the Kailee Mills Foundation on the AVM Alliance Podcast. SE:1 EP:14 www.avmalliance.org www.avmalliancepodcast.com