Reviews

I think the podcast series offers a valuable and unique/niche resource to those in the AVM community. It provides emotional support with stories of those in similar situations to feel heard/connected/not alone. Additionally, it presents curated resources including shoulder organizations, free programs, informational books, etc. The podcast shines light on awareness/the potential to participate in medical trials as well. The AVM Alliance Podcast initiative supplies a multi-faceted education center for families affected by AVM. Thank you!!!!

These podcasts are amazing and informative. They make me realize we are not alone. AVM Alliance is full of resources, support groups, and is there for us every step of the way!

I have been following this podcast since I lost my AVM warrior almost 2 years ago. Not only is there valuable information but it gives the sense of family and the feeling of not being alone in this nightmare. This podcast gives update information for families that need it.

I love the podcasts.

I was curious about Icing Smiles so I listened—Wow! Not what I expected at all. I went back and started from the beginning. This podcast has great information and the guests are just so honest. The ending of each episode is helpful and inspirational, and the host really does a nice job. I’m impressed & definitely will keep listening!

I love how Raylene shares information and gets at the heart of real stories that I can truly relate to

I've been looking for a podcast that I can follow to help me learn more about this rare disease. The guests are knowledgable and info is relevant.

Excellent presentation and very useful information.

It was great. Loved hearing about the service dogs. Raylene is a great host. Enjoyed the guest speakers too.

I love how informative it is over a very little known topic. Spreading awareness is a huge deal!