Stephany Zumerling
patient
I am a patient whom after suffering more than a decade with a slew of symptoms was finally diagnosed with three rare conditions; Appendix Cancer, Hereditary Hemorrhagic Telangiectasia (HHT) and Cerebral AVMs. Getting to the correct diagnoses was not an easy feat. It took years to have the courage to seek out a second opinion, and find a doctor that would take my case seriously. Someone who would believe that the symptoms I was exhibiting wasn’t just a cause of anxiety or the disorders I was misdiagnosed with. I knew deep down something still wasn’t right, I could feel it! My body was trying to tell me something. I just needed to find a doctor who would listen.
Feb. 7, 2023
It's Not All in My Head: An HHT Story
This podcast starts with a brief explanation of the genetic condition, Hereditary Hemorrhagic Telangiectasia (HHT) and tells the story of Stephany Zumerling who suffered for years without the correct diagnosis. Her medical journey offers lessons we can all learn from and highlights the importance o…