Kyler Lewis

Avm Brain Bleed Survivor

On April 10, 2020 Kyler was riding in the car with his mom when he suddenly turned to her very confused. He told her he didn't know where he was or how he got in the car. His mom rushed him to Texas Children's Hospital where he was diagnosed with an Acute spontaneous intracranial hemorrhage. He was bleeding in his brain from an Arteriovenous Malformation (AVM) a rare congenital condition that effects less than 1% of the population. He required emergency surgery to stop the hydrocephalus (Brain Swelling) the rupture in his brain had caused. An MRI later revealed that Kyler's AVM is a Spetzler-Martin grade 5 in the Parietal/occipital lobe. It is a Ticking Time Bomb that can rupture again at anytime. Kyler has spent the last 3 years undergoing gamma knife brain radiation and chemotherapy to treat this disease. He hopes that one day his AVM will be small enough to be removed via a craniotomy. Until then, with his dog Sammy, he advocates for pediatric stroke and brain AVM awareness.